Privacy and Digital Health: Causes for Concern and a Way Forward

Check out our recent Journal of Addiction Medicine invited commentary

Privacy and Digital Health: Causes for Concern and a Way Forward

In our new invited commentary, we discuss the risk associated with lax privacy practices found in digital health approaches to addiction treatment and recovery. These risks only continues to grow as data is hoovered up by law enforcement and companies interested in further marginalizing people who use drugs. We hope this commentary draws more attention to these issues and solutions.

Next steps

We continue to monitor the companies that are sharing this private health data in a way that harms people seeking treatment or recovery supports online.

Health Breach Notification Tracking (Report 2.2)
It’s been 1,384 days and still no health breach notifications from 22 companies blatantly violating people’s health privacy rights.

Keep an eye out for new research and advocacy opportunities.

We'd love to hear from you if you're interested in this topic!


Opioid Policy Institute by Jonathan JK Stoltman, PhD is licensed under CC BY-NC-SA 4.0

Digital Health - Opioid Policy Institute
Digital health is a burgeoning area of investment and interest. Unfortunately, it isn’t always easy for patients to tell who the bad actors are. We aim to change this. We want to answer the essential question: How can we protect and expand the rights of patients with opioid use disorders, while reducing barriers to care?
Privacy and Digital Health: Causes for Concern and a Way... : Journal of Addiction Medicine
compliance,” often utilize surveillance technologies that enable widespread data sharing, including sensitive health information and location data, with third parties, often without informed consent. This is particularly concerning as individuals seeking addiction treatment share highly sensitive data that, once outside the controlled medical and research setting, can lead to discrimination, legal risks, and algorithmic profiling. Drawing on evidence of deceptive practices by digital health companies and a lack of oversight, this commentary argues that current approaches prioritize surveillance capitalism over data protection. This model increases vulnerabilities that disproportionately impact marginalized populations. We must reimagine digital health approaches for SUD treatment by rejecting the surveillance-driven status quo. Implementing a “privacy by design” framework is crucial, alongside robust accountability mechanisms and professional guidance. Effective digital health solutions for SUD must be rooted in ethical standards that prioritize patient dignity, autonomy, and privacy as foundational principles, ensuring that technological innovation aligns with established medical and research ethics. Ultimately, the goal is to leverage digital health’s potential while safeguarding the rights and well-being of vulnerable individuals seeking SUD treatment.…